FAQ

Here is a list of frequently asked questions about the Healthy Parent Carers study. If your question is not here, please don’t hesitate to get in touch with us and we will be more than happy to answer any questions you may have.

What is Healthy Parent Carers?

The Healthy Parent Carers is a programme that is being run by the PenCRU childhood disability research group with parent carers in our Family Faculty and the Council for Disabled Children. It provides information about simple steps that parent carers can take every day to improve their health and wellbeing. It has been designed with parent carers.

How is the Healthy Parent Carers programme delivered?

There are two ways of taking part in the programme. Participants will be randomly allocated to one of these groups as part of the research study:

  • Online resources – providing information, links to videos, and activities for self-study to help parent carers learn about ways to improve their health and wellbeing.
  • Group programme – a series of daytime or evening weekly group sessions, during the Spring or Summer term 2019, with a break for half term. The sessions will be delivered by two trained parent carers.
Why is it random allocation, why can’t I choose which type of programme to do?

We want to find out the best way to provide information and support to parent carers to improve their health and wellbeing. Particularly given limited public resources, we need to find out whether Healthy Parent Carers should be delivered in group sessions, or online.

In this study we want to find out how parent carers feel about these two ways of delivering the programme. To make sure that the two groups are essentially the same, we have to assign parent carers randomly rather than letting parent carers select. Both groups are equally important to the success of the study.

How much time will it involve?

All participants: Participants will be asked to commit to attending:

  • completion of online questionnaire (approximately one hour) with a researcher present for support if needed
  • completion of online questionnaire (one hour) at the end of the programme
  • telephone interview (30 minutes) after completion of programme (optional)
  • completion of online questionnaire (one hour) after 6 months

Group programme: Participants in the group programme will also be asked to commit to attending:

  • six weekly sessions (10:00am to 2:00pm) or twelve weekly sessions (7:00pm-9:00pm) during the school term at a specific venue.

Online resources: Participants accessing the online resources will also be asked to:

  • read through the online written resources (approximately 3 pages per module) and follow the links (video and audio files, up to 15 minutes each) for 12 modules about health and wellbeing.
How long will Healthy Parent Carers run?

The Healthy Parent Carers project will run until the summer of 2020. The programme is being delivered to participants in the Spring and Summer Terms of 2019.

Who is funding the Healthy Parent Carers study?

This project is funded by the National Institute for Health Research (project number PB-PG-0317-20044) and the National Lottery Community Fund.

How can I get involved?

We are looking for parent carers in Devon, Cornwall, and Somerset to take part in a research study starting in early 2019.

We are looking for parent carers who:

  • are primary carers of a child or young person up to age 25 with additional needs or SEND
  • want to find out about ways to improve their health and wellbeing
  • are willing and able to attend group sessions if allocated to that way of participating
  • are able to access online information

If you are interested in taking part or would like to find out more, please contact us or ring us on 01392 722 968.