Parent carers of disabled children tend to have poorer mental and physical health than other parents. Researchers and parent carers have co-developed a programme to improve the health and wellbeing of parent carers of disabled children.
The programme is led by parent carers and involves working with others in a group to encourage behaviours associated with better health and wellbeing. The behaviours are called CLANGERS: Connect, Learn, be Active, Notice, Give, Eat well, Relax and Sleep, and are based on a book by Dr Phil Hammond.
We want to see whether the programme can be delivered in the community through organisations that have links with parent carers. We also want to find out whether we can test the programme to see whether it improves health and wellbeing and whether it is good value for money.
We will randomly allocate parent carers to either receive the group intervention or to receive only the Healthy Parent Carer Guide information online. All parent carers will complete questionnaires before and after the programme and 6 months later.
We want to find out whether parent carers are willing to take part in a study like this, whether enough people sign up and stay to the end of the study, and whether the ways we measure health and wellbeing are appropriate.
If this study shows the group programme can be delivered and evaluated in the way we propose, we can plan a larger study to test whether the programme improves parent carers’ health and wellbeing.
This research is NHS-funded and has been approved by an ethics committee.
The programme is running in specific locations, days, and times in Devon, Cornwall, and Somerset, which are shown on the map below.