The ICoN study aims to find out how NHS staff assess and treat children with special educational needs and disability to help them become continent. Research to evaluate the ways to improve continence for children with special educational needs and disability was in the top 10 research priorities as voted for by families and clinicians. It is really exciting that we have the opportunity to be addressing this often neglected topic in research that is central to the daily lives of children and families.

We want to hear from families, young people, NHS staff, and school and social care staff about their experiences. We will do this using a questionnaire survey and a systematic review.

To hear more about the survey part of the study, please watch our video by clicking the image below.



Please contact the team if you would like to be involved! We would love to hear from you.