Improving Continence in children and young people with neurodisability
Improving Continence in children and young people with neurodisability
23/1/2024
Survey results published in BMJ Paeds journal https://bmjpaedsopen.bmj.com/content/8/1/e002238.full
19/1/2022
Poster to be presented at ‘Better Together’ International Alliance of Academies of Childhood Disability Conference 2022.
2/12/2021
ICON Research Study now published
The full report of our Improving Continence in children and young people with neurodisability (ICON) research study has been published in the NIHR Library https://www.journalslibrary.nihr.ac.uk/programmes/hta/172002/#/
31/10/2019
The Health Professional and Parent Carer surveys are now CLOSED!
Due to an excellent response, we have now closed registrations for the Health Professional and Parent Carer survey. If you have signed up but haven’t yet completed it, there is still time! We are leaving the response time open until 10th November to allow people to complete. Please get in touch on icon@exeter.ac.uk if you are having trouble accessing the survey and we can reset it for you.
For the time being, the survey for School and Social Care Staff, and the survey for Young People will remain OPEN. Please continue to sign up and share your experiences of toileting support in these surveys.
14/10/2019
We still need to hear your views about toileting!
The project has had a great response so far, with nearly 1500 people signed up to receive the survey! We are really pleased with this response and interest in the project. This will give us a really good range of responses from young people, parents, school and care staff and health professionals, about the support young people with special educational needs and/or a disability receive to help them with toileting. Although we’ve had a huge number of registrations, only around 50% of those who have registered, have actually completed the survey and submitted their responses to us. If you’ve signed up, please make sure you complete it! If you’ve lost the email, or you have had trouble accessing the survey, please contact us on icon@exeter.ac.uk and we can reset it for you.
We are still particularly keen however to hear from young people and school staff, as these groups have had the lowest response so far.
Are you a young person aged up to 25 with special educational needs and/or a disability?
Or
Do you have experience of working with children and young people with special educational needs and disability, and/or toileting difficulties?
There is still time to sign up! Please register your contact details using the form on the right or on our ‘taking part’ page, and you will be sent a personalised link to the survey.
17/09/2019
We are still recruiting for the survey!
We need as many responses as possible. Please watch our video to find out more about the survey. Click on the image below to watch the video;
05/07/2019
We are recruiting!
Please visit the ‘taking part’ page to pre-register to receive the survey. The survey will be sent to all those that have registered very soon
04/02/2019
The ICoN study is up and running!
Please watch this space – we will be recruiting for the online survey very soon.
