

In the mid to late 1990s Annie, along with service users and carers and other colleagues had decided that if the way research was developed and undertaken did not include the people it was supposed to be about then it was not really going to be of much use.
This led to the ‘Research Who’s It For Anyway?’ Conference held in 1999 and funding for a network of researchers, service users and carers and practitioners – Folk.us
Annie was the Folk.us Lead from 2000 until 2003.


From 2000 until March 2014 Folk.us was funded by the Department of Health in various forms finishing with the National Institute for Health Research (NIHR). We have been part of University of Exeter, Research and Development Support Unit, Peninsula College of Medicine and Dentistry and finally University of Exeter Medical School.
What was the Folk.us aim?
The Folk.us Aim
The Forum for Collaboration with users in Research,
To create a research culture which is meaningfully controlled and influenced by those who use, or care for those who use, services, to ensure that research and implementation is focused on ordinary folks’ real concerns in North and East Devon.
The Folk.us Aim
To support and develop patient, service user and carer involvement in health and social care research activities to ensure that those who use services and those who care for those who use services inform and guide research at all stages.