Tag: Genomics
-
Collaborative Platforms in Genomics – Institutional Arrangements and Business Models
This project will draw on academic scholarship and the input of key academics, industry figures and international policy makers in developing a policy/working paper on collaborative business models in international genomics research and biobanking, for the Organisation for Economic Cooperation and Development (OECD). PROJECT DESCRIPTION Collaborative Platforms in Genomics – Institutional Arrangements and Business Models…
-
Putting it into Practice – Recontacting and Personal Information Management in Genomic Medicine in the NHS
The Centre for Science, Culture and the Law at Exeter publish their first policy brief on genomic medicine and personal information management based on research, SCuLE Policy Brief No 1. In the rapidly evolving world of genomic medicine, understandings of the significance of genomic information change with advances in research. For example, gene mutations may…
-
Recontacting in Mainstreaming Genetics
Is there a professional duty or responsibility to recontact patients for whom providers hold genetic or genomic information? Do patients and health care providers share responsibility for being aware of new developments relevant to the patient’s genome? Do different health care specialties now ordering genetic tests share understandings regarding managing genetic information, which in clinical…
-
The Impact of Patents on Translational Research: Non-Invasive Prenatal Diagnosis in Europe and the US
The intersection of patent law with cutting edge biomedical science presents important challenges to the operation of the law, both in theory and in practice. This research explores the role that patents play in the development and delivery of non-invasive prenatal testing, and considers the implications for the wider field of patents in emerging technologies…