Exeter Collaboration for Academic Primary Care (APEx) Blog
Exeter Collaboration for Academic Primary Care (APEx) Blog
Posted by ma403
29 May 2026Dr Jo Butterworth previously shared news of securing aTeam Science Award | NIHR to support the Multiple Long-Term Conditions Cross-NIHR Collaboration | NIHR, bringing together an interdisciplinary team from across the UK to address important unanswered questions about care for people living with multiple long-term conditions (MLTC).
The workstream (involving researchers, clinicians, methodologists, public contributors and stakeholders across multiple organisations) is focused on improving understanding of how care can best be organised and delivered for people living with MLTC. The team includes Dr Ian Porter contributing to ongoing research and priority-setting activities.
The launch of a new public survey marks an important milestone for the workstream, moving from team-building and evidence synthesis towards identifying the unanswered research questions that matter most to people living with multiple long-term conditions, carers, and those involved in delivering care. Delivered as part of the Multiple Long-Term Conditions Priority Setting Partnership (PSP) in partnership with the James Lind Alliance (JLA),the survey aims to ensure future research priorities reflect a broad range of lived and professional perspectives.
Why is this important?
The number of people living with multiple long-term conditions is increasing, creating growing challenges for individuals, families, carers, healthcare systems and wider society. Despite this, many important questions remain unanswered about how care for people with MLTC should best be organised and delivered.
People living with multiple conditions often interact with numerous services and professionals. Experiences of fragmented care, communication between services, access to support, and involvement in decision-making can all influence outcomes and quality of life.
Building on the wider aims of the Models of Care workstream, this priority-setting exercise seeks to identify the research questions that matter most to those directly affected and ensure future research is aligned with the realities of delivering and receiving care.
About the survey
The survey explores what matters most in how care is organised and delivered for people living with multiple long-term conditions. Topics may include:
Responses will be used to identify and prioritise future research questions, helping ensure that future studies focus on issues that are most important to those directly affected.
Who can take part?
The survey is open to:
We are particularly keen to hear from a diverse range of voices and experiences to ensure future research priorities reflect the realities of living with, caring for, and supporting people with multiple long-term conditions.
Please help us spread the word
Please share the survey with relevant organisations and networks to help ensure broad representation across communities and stakeholder groups.
The survey can be accessed here:
https://exe.qualtrics.com/jfe/form/SV_5dwZnZhbXGxhgR8
For further information, please contact: